Patient Testimonials

“May 10, 2003 at 2:00 pm. Every parent of a child with Rett Syndrome knows the exact time of her diagnosis,” explained Nuria. “It is the moment when parents know life will be totally different.” Nuria’s daughter Abby was diagnosed at 25 months.

Amanda and John, two years apart and brother and sister, were both born with Spinal Muscular Atrophy (SMA).

Returning from a family vacation, Chelsea, 14, lost total sensation in her legs. She couldn’t walk off the plane. Rushed to a nearby hospital where the doctors were not able to handle her case, she was discharged paralyzed in a wheelchair.

My 12 year old son Jason was born 14 weeks premature. He had several complications due to his prematurity including a leg length discrepancy.

Jeff was back performing his break-dancing routine just three months after scoliosis surgery performed by David P. Roye, Jr., MD. At 14, Jeff’s scoliosis was identified.

Family of Thoracic Insufficiency Syndrome Patient Raises $624 for Pediatric Orthopaedic Research

With her bright blue and white cheerleading uniform and blonde ponytail, Jenna looks like a typical active little girl. Yet, in 2005, Jenna underwent groundbreaking surgery to correct a serious spinal curvature, a condition found in patients with thoracic insufficiency syndrome.

Jeremy had emergency surgery in 2008 while vacationing in Texas to repair a shattered femur. In 2010, Jeremy started to experience some pain and found Dr. Hyman through a family friend’s recommendation. Dr. Hyman discovered that the hardware used in the original surgery was starting to separate and advised removal.

Kate rides horses competitively; sky dives and has future plans to go bungee jumping. "I want to do it all," stated Kate, a 19-year-old scoliosis patient. "I feel like I was given a stronger, happier future and I want to make the most out of it."

Kenia thought she was going for a routine checkup with Dr. Michael Vitale who has been treating her rare spinal deformity.

For nearly a year, my mom had been worried about me. Last summer, during a trip to Washington, D.C., she noticed a lump on my rib as I sat in my wheelchair.

I guess I had a pretty typical childhood with some exceptions. Here is what my mother has to say:

Scoliosis was inevitable for Peri because of her neuromuscular disease.

Risa was born to be a little person.

Like many young female athletes, Samantha is a force.

After Sonya's parents did extensive research about club feet, they brought her to the Center for Clubfoot to see Joshua Hyman, MD.

"Just turn the rod." It was a simple fact of life for Teresa when she was 8 years old. Teresa was wearing an external fixator on her left leg with a metal rod inserted into the bone that needed to be turned four times a day.

At 6’8”, Will is a force to be reckoned with on the basketball court. However, due to an injury and the discovery of a rare congenital condition called Bertolotti’s Syndrome, there was a time when Will and his family thought his hoop dreams may be over.

Zac was born with a rare bone deformity that caused his legs to bow and his feet to point inward.

Early Diagnosis and Treatment Enables Bilateral Clubfoot Patient to Dance and Play