Sarah: Congenital Scoliosis

Sarah was diagnosed with congenital scoliosis, a condition that occurs when a child’s spine doesn’t form correctly in utero. This type of curvature has a 75 percent chance of progressing if not treated surgically. Additionally, about half of children with congenital scoliosis also end up having improperly formed organ systems. When Dr. Roye recommended an interior/posterior spinal fusion, they understood that their child’s overall health was in jeopardy and time was of the essence.

Surgery was scheduled right away. Sarah’s parents were understandably extremely concerned by their toddler’s need to undergo such a complex operation. “Dr. Roye explained everything to us very calmly. He had such a peace about him and even made a little joke to put us at ease. He let us know that everything was going to be fine. We walked into his office with a heavy burden but left filled with hope,” remembered Judy.

Sarah was in surgery for approximately four hours. Afterward, she spent three days recovering in the hospital, charming the nursing staff, playing and watching cartoons. “I don’t remember much about being in the hospital, but I do remember sitting up in bed watching Winnie the Pooh,” laughs Sarah.

Recovery went very smoothly. Sarah wore a brace for a couple of months, and saw steady improvement with each check up at Dr. Roye’s office. In fact, her curvature improved so much that she no longer needs a yearly check up.

Today, Sarah is an active 17-year-old. She is an avid figure skater and soccer player, and is now running track and cross-country for her school. Nothing slows her down.

“It’s important for parents to connect with the right doctor and get the right treatment when their child is diagnosed with scoliosis. Dr. Roye assured us that there was a light at the end of the tunnel,” said Judy.  “We are so grateful for the work of Dr. Roye and his team at New York- Presbyterian Morgan Stanley Children’s Hospital.”